Joep's story
In this video, Joep explains how building tools with his 3D printer has made his life with scleroderma easier. These tools allow him to concentrate on what he wants to do, instead of what he cannot do. To Joep, maintaining his independence is very important.
"I don't think in problems, I think in solutions."
– Joep
More stories
Having a safe space can help with the stress of managing scleroderma. Rute discusses her love for the beach and the calm that it brings.
Michael relocated with his wife and dogs following his diagnosis. He explains how living in the moment has helped him to find happiness.
Anna talks about how she has adapted her life to continue to be able to do the things she loves, despite her symptoms.
No one expects to develop scleroderma. Doris focuses on the importance of concentrating on the present, instead of the unknown.
Scleroderma did not stop Jessica from achieving her goals. She pursued her dreams regardless of the diagnosis.
Symptoms of scleroderma can feel frustrating and unfair. Alex talks about how she overcame this and now looks for joy in everyday life.
Staying positive can be difficult, but Mandy uses craft and creativity to continue to stay optimistic.
It’s easy to be fearful in the face of disease, but Mike and his wife, Alison, are an inspiring example of how you can lean on each other.
Some of the symptoms of scleroderma are easy to miss. Susan candidly recounts what her experiences with scleroderma have taught her.
A positive mindset can help you overcome some obstacles of scleroderma. Maria talks about the importance of changing your outlook.
Symptoms effect everyone differently. Lorraine is able to live an active lifestyle and has continued teaching exercise classes, despite her diagnosis.
Scleroderma can feel like the most important issue in your life. Here, Grazia explains how she overcame her fear to concentrate on her family.
Scleroderma may mean you can no longer do some of the things you enjoy. Monica describes how she's learnt to love new things.
Despite her diagnosis, Teresa continues to travel and share new experiences with the people she cares about.
Danièle has lived with scleroderma for 22 years. She continues to find happiness in simple everyday pleasures and the company of friends.
You may also like to read:
Mindfulness
Support
